Thursday, June 16, 2011

Okay, so I am totally a nube at this blogging stuff--which dates me--but I failed to mention why "Twice special." Twice special refers to children who are diagnosed with a disability, but who possess a very high level of intelligence. Often these children are very frustrated in school because they find it boring and unchallenging, yet they struggle to keep up on other aspects of schooling.

These children, often have struggles with debilitating disorders such as ADHD, asperger's syndrome, or dyslexia, to name a few. In addition to their disability, they are incredibly intelligent. For example, a child with incredible math skills can struggle at reading. This child will present in the classroom as being someone behind grade level and in need of remediation, when in fact their grasp of concepts is well beyond that of their peers and they just can't always keep up with the work because of their reading struggles.

In our case, one of my sons has formally been diagnosed with Asperger's syndrome and a comorbid diagnosis of ADHD. He also has difficulty with sensory integration, and visual memory processing. This means that even though he is a genius, he struggles to keep up with the class, gets easily distracted, and struggles to advocate for himself. I have other children that present many of the same things, and we suspect that they might also have some of the same issues. However, they are not quite as severe, and we are able to manage them.

My responsibility as a mother is to advocate for these precious, and extremely precocious children so that they can become functioning members of society.

I have learned to also laugh at ourselves as we navigate this uncharted region of existence.

Spectrum mothering

It has been three years now since my son was diagnosed with Asperger's syndrome, two years since my other son was diagnosed with social anxiety, and one year since my other son was diagnosed with ADHD. It was a relief to finally find out that it wasn't "just me" that could see my children were different. I now had an excuse for his odd social behavior. I'm not crazy!

It has been a relief, and also a struggle. I am relieved that it isn't just me, and yet I struggle to not make it the excuse for everything that happens in their lives.

This blog is dedicated to the struggles and challenges, and joys and blessings that come from mothering children that are "twice special."

May we all prevent our children from becoming the unabomber.